a. What is Global Developmental Delay?
b. Causes
c. Outcome
d. Management
What is Global Developmental Delay?

A child with developmental delay is a child who is not achieving certain skills as quickly as expected. In otherwords, the child is not reaching developmental landmarks at the usual age.

One subset of children with developmental delay includes those with very early onset of their disorder. These children have delay in walking and other motor skills and their motor difficulties do not get worse over time. This is often referred to as "cerebral palsy." Conditions that are genetic (inherited) are not usually included in this category. Very low birth weight infants account for many, but not all, children who meet the criteria for "cerebral palsy."

Causes

There are numerous causes of developmental delay. One of the goals of the Pediatric Neurologist is to identify the cause of a child's neurologic or develomental problem. Sometimes this task is easy (for example, if a child had obvious brain injury from a severe brain infection), but more often it is difficult and may require a variety of different tests. The tests we recommend are based on the information we gather from parents and the findings on physical examination. It often takes more than one clinic visit to identify a specific disease, condition or syndrome. Children are constantly changing. As we follow this pattern of change, new diagnoses may be considered. Often, despite the tests and several clinic visits, we are unable to identify a specific diagnosis.

There are at least two major reasons for trying to arrive at a specific diagnosis for your child.
We need to know what caused the developmental delay to tell parents, siblings and other family members whether another child with developmental delay is likely to be born in this family. Some causes of developmental delay are inherited and others are chance events that are unlikely to recur.

Assigning a specific diagnosis allows us to better predict the outcome for a given child and to anticipate any other problems that might arise.

Outcome

Parents often wonder what developmental delay will mean for the child as he or she gets older. This depends in part on the cause of the developmental delay, but some generalizations are useful. Sometimes, mildly delayed children will catch up during early childhood. Often, however, children who are delayed continue to have problems in adulthood. These problems may affect primarily the motor system and lead to difficulty walking, or even the inability to walk. Sometimes developmental delay affects primarily language or ability to learn. Some children with developmental delay will have other associated problems, such as abnormalities of vision or hearing, behavioral problems, or seizures. In many children all systems are affected. Most children who are delayed have strengths and weaknesses and parents are often the first ones to recognize their child's strengths.

The end point of achievements for a child who is developmentally delayed is often different from that of the average child. Exactly what will be achieved in adulthood can vary dramatically within the developmentally delayed population as it does within the "average" population.

Management

There is almost never a specific medicine or surgical procedure that will correct developmental delay. The most important thing a parent can do for a delayed child is provide a loving and stimulating environment. We often recommend contact with the physical or occupational therapist to assist you in providing appropriate exercises and stimulation for your child. This is usually through the AEA (Area Educational Agency) for families in Iowa. We may also refer your child to other specialists for management of specific problems such as tight muscles or abnormalities of vision. The goal of treatment is to maximize abilities while preventing new problems as much as is possible.
 
Source: Kathy Mathews, M.D.
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